Financial toxicity among public oncology patients in Australia: A qualitative analysis
Background: As cancer treatments become more complex, financial toxicity—encompassing direct and indirect costs to patients and families—has emerged as a significant issue. In our recent study of public patients with cancer in Australia, we found that a substantial proportion experienced financial toxicity, which was associated with poorer quality of life. A deeper understanding of its sources is needed to inform interventions.
Objective: This study explored the spectrum of costs, restrictions on spending, impact on work, and treatment adherence among public patients receiving anti-cancer therapy.
Methods: A cross-sectional qualitative study was conducted using semi-structured telephone interviews with patients purposively sampled from those with the highest levels of financial toxicity, based on Comprehensive Score for Financial Toxicity questionnaire scores. Interviews were audio-recorded, transcribed, coded in NVivo, and analyzed using inductive thematic analysis.
Results: Twelve patients were interviewed; data saturation was reached at the 12th interview (median age = 52.7 years; 66.7% women). Three key themes emerged: (i) increased cancer-related out-of-pocket costs, including diagnostic imaging, general practitioner and specialist follow-up, treatment complications (e.g., lymphedema), parking, and personal expenses; (ii) reduced financial resources from lost employment and productivity; and (iii) mitigation strategies, such as restricting non-health expenditures (e.g., luxuries, travel), accessing sickness benefits, and drawing on savings.
Conclusion: Even within a universal healthcare system, patients with cancer face significant, unexpected out-of-pocket costs from diagnostic tests, medications, treatment complications, travel, and income loss. Participant narratives suggest that these financial pressures may influence treatment adherence, psychosocial well-being, and holistic care. Greater awareness and improved access to mitigating strategies are needed to reduce financial toxicity and its impact on patients and families.
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